Burn Recovery Evaluation - Rehabilitation Outcomes Center

Authors

In alphabetical order:

Amy Acton, RN, BSN (Phoenix Society for Burn Survivors)
Alan M. Jette, PT, PhD (Boston University)
Lewis E. Kazis, ScD (Spaulding Rehabilitation, Boston University)
Pengsheng Ni, MD, MPH (Boston University)
Colleen M. Ryan, MD, FACS (Mass General Hospital, Shriners Burns Hospital)
Jeffrey C. Schneider, MD (Spaulding Rehabilitation)
Mary D. Slavin, PT, PhD (Spaulding Rehabilitation, Boston University)

Publications

Adult LIBRE Publications

Kazis LE, Marino M, Pengsheng N, Soley-Bori M, Amaya F, Dore EC, Ryan CM, Schneider JC, Shie V, Acton A, and Jette AM. Development of the Life Impact Burn Recovery Evaluation (LIBRE) Profile: Assessing Burn Survivors’ Social Participation. Quality of Life Research. Qual Life Res. 2017 Oct;26(10):2851-2866. doi: 10.1007/s11136-017-1588-3. PMID: 28493205
Grieve B, Shapiro GD, Wibbenmeyer L, Acton A, Lee AF, Marino M, Jette A, Schneider JC, Kazis LE, Ryan CM. Long-Term Social Reintegration Outcomes for Burn Survivors with and without Peer Support Attendance: A Life Impact Burn Recovery Evaluation (LIBRE) Study. Arch Phys Med Rehabil. 2020 Jan;101:S92-98. doi: 10.1016/j.apmr.2017.10.007. PMID:29097179
Schneider JC, Shie VL, Espinoza LF, Shapiro GD, Lee A, Acton A, Marino M, Jette A, Kazis LE, Ryan CM. Impact of work-related burn injury on social reintegration outcomes: A Life Impact Burn Recovery Evaluation (LIBRE) study. Arch Phys Med Rehabil. 2020 Jan;101:S86-91. pii: S0003-9993(17)31383-7. doi: 10.1016/j.apmr.2017.10.022. PMID: 29183751
Dore E, Marino M, Ni P, Lomelin-Gascon J, Sonis L, Amaya F, Ryan CM, Schneider JC, Jette AM, Kazis LE. Reliability & Validity of the LIBRE Profile. 2018 Nov; 44(7):1750-1758. doi: 10.1016/j.burns.2018.04.001 PMID: 30075970
Schulz JT, Shapiro GD, Acton A, Fidler P, Marino ME, Jette A, Schneider JC, Kazis LE, Ryan CM. The Relationship of Level of Education to Social Reintegration after Burn Injury: a LIBRE study. Journal of Burn Care and Research. 2019 Aug 14; 40(5):696-702. doi: 10.1093/jbcr/irz074 PMID: 31067572
Saret CJ, Ni P, Marino M, Dore E, Ryan CM, Schneider JC, Kazis LE. Social Participation of Burn Survivors and the General Population in Work and Employment: A Life Impact Burn Recovery Evaluation (LIBRE) Profile Study. J Burn Care Res. 2019 Aug 14;40(5):669-677. doi: 10.1093/jbcr/irz074. PMID: 31069384
Ohrtman EA, Shapiro GD, Wolfe AE, Trinh NT, Ni P, Acton A, Slavin MD, Ryan CM, Kazis LE, Schneider JC. Sexual Activity and Romantic Relationships after Burn Injury: A Life Impact Burn Recovery Evaluation (LIBRE) Study. Burns. 2020 Nov;41(7):1556-1564. https://doi.org/10.1016/j.burns.2020.01.003
Slavin MD, Ryan CM, Schneider JC, Acton A, Amaya F, Saret C, Ohrtman E, Wolfe A, Ni P, Kazis LE. Interpreting Life Impact Burn Recovery Evaluation (LIBRE) Profile Scores for Use by Clinicians Burn Survivors and Researchers. J Burn Care Res. 2021 Feb 3;42(1):23-31. doi: 10.1093/jbcr/iraa100.
Ryan CM, Shapiro GD, Rencken CA, Griggs C, Jeng JC, Hickerson WL, Marino M, Goverman J, Kazis LE, Schneider JC, and the LIBRE Advisory Board. The Impact of Burn Size on Community Participation: A Life Impact Burn Recovery Evaluation (LIBRE) Study. Ann Surg. 2020 Dec 18;Publish Ahead of Print. doi: 10.1097/SLA.0000000000004703. Online ahead of print.
Levi B, Kraft CT, Shapiro GD, et al. The Associations of Gender With Social Participation of Burn Survivors: A Life Impact Burn Recovery Evaluation Profile Study. Journal of Burn Care & Research. 2018 Oct 23;39(6):915-922. doi:10.1093/jbcr/iry007. PMID: 29733365
Ohrtman EA, Shapiro GD, Dore E, et al. Social Interactions and Social Activities after Burn Injury: A Life Impact Burn Recovery Evaluation (LIBRE) Study. Journal of Burn Care & Research. 2018 Oct 23;39(6):1022-1028. doi: 10.1093/jbcr/iry038. PMID: 30016442
Ni P, Marino M, Dore E, Sonis L, Ryan CM, Schneider JC, Jette AM, Kazis LE. Extreme response style bias in burn survivors. PLos One. 2019 May 6;14(5):e0215898. doi: 10.1371/journal.pone.0215898. eCollection 2019. PMID: 31059527
Kelter BM, Shepler LJ, Ni P, et al. Developing trajectories of social recovery after burn injury: Preliminary results from the LIBRE Journey Study. https://doi.org/10.1016/j.burns.2021.11.025. Online ahead of print.

Pediatric LIBRE Publications

Cartwright S, Saret C, Shapiro GD, Pengsheng N, Sheridan RL, Lee AF, Marino M, Acton A, Kazis LE, Schneider JC, Ryan CM. Burn survivors injured as children exhibit resilience in long-term community integration outcomes: A Life Impact Burn Recovery Evaluation (LIBRE) study. Burns. 2019 Aug;45(5):1031-1040. doi: 10.1016/j.burns.2019.02.008. PMID: 30850227
Brady KJS, Grant G, Stoddard FJ, Meyer WJ, Romanowski KS, Chang PH, Painting LE, Fowler LA, Nelson JK, Rivas P, Epperson K, Sheridan RL, Murphy M, O'Donnell EH, Ceranoglu TA, Sheldrick RC, Ni P, Slavin MD, Warner P, Palmieri TL, Schneider JC, Kazis LE, Ryan CM. Measuring the Impact of Burn Injury on the Parent-Reported Health Outcomes of Children 1- to 5- Years: A Conceptual Framework for Development of the Preschool Life Impact Burn Recovery Evaluation (LIBRE) Profile CAT.J Burn Care Res. Jan/Feb 2020; 41(1):84-94. doi: 10.1093/jbcr/irz110.
Grant GG, Brady KJS, Stoddard FJ, Meyer WJ, Romanowski KS, Chang PH, Painting LE, Fowler LA, Nelson JK, Patel KF, Sheldrick RC, Carter A, Sheridan RL, Slavin MD, Warner P, Palmieri TL, Schneider JC, Kazis LE, Ryan CM. Measuring the impact of burn injury on the parent-reported health outcomes of children 1-to-5 years: Item pool development for the Preschool_1–5Life Impact Burn Recovery Evaluation (LIBRE) Profile. J Burn Care Res. 2021 Feb 25; doi.org/10.1016/j.burns.2021.02.010. Online ahead of print
Rencken CA, Rodríguez-Mercedes SL, Patel KF, et al. 1 Development of the School-Aged Life Impact Burn Recovery Evaluation (SA-LIBRE: 5–12) Profile: A Conceptual Model Framework. Journal of Burn Care & Research. 2021;42:S6-S7. doi:10.1093/jbcr/irab032.006

LIBRE International Publications

Kazis LE, Sager A, Bailey HM, Vasudevan A, Garrity B, Tompkins RG. Physical Rehabilitation and Mental Health Care After Burn Injury: A Multinational Study [published correction appears in J Burn Care Res. 2022 May 17;43(3):758. doi: 10.1093/jbcr/irac004]. J Burn Care Res. 2022;43(4):868-879. doi:10.1093/jbcr/irab214

Vasudevan A, Bailey HM, Sager A, Kazis LE. Impact of the Early COVID-19 Pandemic on Burn Care: A Multi-National Study. J Burn Care Res. 2023;44(3):580-589. doi:10.1093/jbcr/irac076

Kazis LE, Marino M, Ni P, Soley Bori M, Amaya F, et al. Development of the life impact burn recovery evaluation (LIBRE) profile: assessing burn survivors' social participation. Qual Life Res. 2017 May 10; PubMed PMID: 28493205.

Dore EC, Marino M, Ni P, Lomelin-Gascon J, Sonis L, Amaya F, Ryan CM, Schneider JC, Jette AM, Kazis LE. Reliability & validity of the LIBRE Profile. Burns. 2018 Nov; 44(7):1750-1758. PMID: 30075970.

Marino M, Soley-Bori M, Jette AM, Slavin MD, Ryan CM, Schneider JC, Resnik L, Acton A, Amaya F, Rossi M, Soria-Saucedo R. Development of a Conceptual Framework to Measure the Social Impact of Burns. J Burn Care Res. 2016

Slavin MD, Ryan CM, Schneider JC, Acton A, Amaya F, Saret C, Ohrtman E, Wolfe A, Ni P, Kazis LE. Interpreting Life Impact Burn Recovery Evaluation Profile Scores for Use by Clinicians, Burn Survivors, and Researchers. J Burn Care Res. 2021 02 03; 42(1):23-31. PMID: 32556266

The LIBRE Profile was developed in collaboration with Boston University School of Public Health, the Boston-Harvard Burn Injury Model System, Mass General Brigham and the Phoenix Society for Burn Survivors, with funding by the National Institute on Disability, Independent Living and Rehabilitation Research, Award Number 90DP0055. The LIBRE Profile uses the World Health Organization’s International Classification of Functioning, Disability and Health (ICF) as a conceptual framework. The LIBRE Profile was developed specifically to measure social participation in persons with a burn injury.

Life Impact Burn Recovery Evaluation Profile (LIBRE)

The LIBRE Profile

Availability