Welcome to the LIBRE Profile

We hope you can use this tool to assist your recovery!

LIBRE app

What is LIBRE Profile?

The Life Impact Burn Recovery Evaluation (LIBRE) Profile is a self-reported outcome measure of social participation for adults (18 years or older) with burn injury.

Click here to download the LIBRE App [link to the App Stores]

Learn more about what the LIBRE Profile measures [link to the domain description page]
How can you use the LIBRE Profile assessment [link to the use examples page]
Frequently asked questions [link to the FAQs page]
Learn more about the LIBRE Profile scores [link to the score page, the App will also have the link to the score page.]
Access resources to assist in your recovery [link to Phoenix Society LIBRE App page, the App will also have the link to the Phoenix Society LIBRE App page.]

What aspects of social participation does the LIBRE Profile measures?

The LIBRE Profile measures different aspects of an individual’s ability to engage in everyday social situations. It assesses six social participation domains (areas) identified as important to persons with burn injury: Relationships with Family & Friends, Social Interaction, Social Activities, Work and Employment, Romantic Relationships and Sexual Relationships (Table 1.1).

Table 1.1: LIBRE Profile Social Participation Domains

LIBRE Profile Domains	Description
Relationships with Family & Friends	Items ask how the burn injury may impact on family relationships and socializing with the family. Perceptions include how a burn survivor’s appearance may affect the individuals’ ability to interact with family members. Included are both the comfort level and activities one participates in with family and friends, in addition to level of family support.
Social Interaction	Items ask about the ability of burn survivors to interact with people and situations that are familiar; commonly reported problems for burn survivors are difficulty and anxiety in social situations.
Social Activities	Items ask about the burn survivors’ perceptions of accomplishing daily activities and their ability to participate with others in these activities. These activities range from involvement in organized social events in the community, sports events for example, to informal gatherings with friends and associates, or to parties with peers from work or other friends.
Work & Employment	Items ask about relationship with coworkers, satisfaction with one’s work, and the relationship with one’s peers on the job. In addition, the domain includes content related to performance of work, work responsibilities, energy on the job, and work absences due to health problems related to the burn injury.
Romantic Relationships	Items ask about communication, sharing of problems with a romantic partner, emotional closeness and comfort talking about problems, and enjoyment of the partner. The scale also identifies the conduct of social activities that can be both intimate and emotional.
Sexual Relationships	Items are specific to sexual functioning and the physical act of sex and how that might impact a relationship for the burn survivor.

Examples of LIBRE Profile use:

Potential uses

Clinical quality improvement
Community needs assessment
Individual self-assessment and tracking
Identify individuals who may benefit from additional resources

Potential metric for research studies

Research effectiveness of interventions aimed at improving social participation
Quantify social participation as part of ongoing research in burn injury recovery

Provides quantitative scores with interval-level data

Can compare same-domain scores across different time points or different individuals

FAQs

Who completes the LIBRE Profile?

The LIBRE Profile is self-report measure of social participation developed for persons 18 years of age or older, with burn injury ≥ 5% total body surface area or to critical area(s) (hands, feet, face, genitals). The LIBRE Profile is only available in English.

What if the burn survivor lacks the cognitive ability or language skills needed to answer the LIBRE Profile items?

If the burn survivor cannot read or answer the items due to cognitive impairments, intellectual disabilities, impaired language abilities, or other reasons, the LIBRE Profile should not be administered.

What if the burn survivor has visual or motor impairments and cannot complete the assessment independently?

A “recorder” (e.g., clinician, family member) can help to record responses. The recorder should not influence or answer items for the burn survivor.

How should I instruct burn survivors to fill out the LIBRE assessment?

Please follow the instructions to complete the assessment.

What if a burn survivor skips an item or several items?

Encourage the burn survivor to answer all questions in order to obtain the most accurate score; however, if the burn survivor is not able to, or does not want to answer a question, he or she may leave it blank.

How is the Standardized Score (T-Score) interpreted?

The Standardized Score (T-Score) places the participant’s score on a common metric based on a calibration study of 601 adult burn survivors. The Standardized Score (T-Score) has a mean of 50 with a standard deviation of 10. Standardized Scores (T-Scores) can be interpreted as follows:

LIBRE Profile-SF scale score of 50 à The burn survivor’s level of social participation is similar to the average level of social participation of the adult burn survivors included in the calibration sample.
LIBRE Profile-SF scale score of 40 à The burn survivor’s level of social participation is 1 standard deviation below the level of social participation of the adults included in the calibration sample.
LIBRE Profile-SF scale score of 60 à The burn survivor’s level of social participation is 1 standard deviation above the level of social participation of the adults included in the calibration sample.

Standard deviation example

Level	Score Range	Description
Relationships with Family and Friends involve spending time together, close relationships, and getting along.
1	<30	I am very uncomfortable in my relationships with family and friends. I get very little or no support.
2	31-44	I am somewhat uncomfortable in my relationships with family and friends. I get some support.
3	45-60	I am somewhat comfortable in my relationships with family and friends. I get quite a bit of support.
4	>61	I am very comfortable in my relationships with family and friends. I get a lot of support.
Social Activities involve outdoor activities, going to community events, and doing things with family and friends.
1	≤28	I am very uncomfortable and almost always avoid participating in social activities.
2	29-45	I am moderately uncomfortable and often avoid participating in social activities.
3	46-58	I am moderately uncomfortable and often avoid participating in social activities.
4	>59	I am comfortable and hardly ever avoid participating in social activities.
Social Interactions involve meeting strangers, going out with friends, and being in public.
1	<22	I am very uncomfortable and almost always avoid social interactions. I am very much troubled by my appearance and how others react to me.
2	23-35	I am moderately uncomfortable and often avoid social interactions. I am quite a bit troubled by my appearance and how others react to me.
3	36-54	I am mildly uncomfortable and sometimes avoid social interactions. I am somewhat troubled by my appearance and how others react to me.
4	>55	I am comfortable and hardly ever avoid social interactions. I am a little bit or not at all troubled by my appearance and how others react to me.

1	<30	I am very uncomfortable in my romantic relationship(s).
2	31-42	I am somewhat uncomfortable in my romantic relationship(s).
3	43-54	I am somewhat comfortable in my romantic relationship(s).
4	>55	I am very comfortable in my romantic relationship(s).
Sexual Relationships involve interest in sex, ability to have an orgasm, emotional closeness, and being able to do sexual activities.
1	≤27	I am very uncomfortable in my sexual relationship(s). My sexual relationship(s) is (are) not satisfying.
2	28-44	I am somewhat uncomfortable in my sexual relationship(s). My sexual relationship(s) is (are) somewhat satisfying.
3	45-61	I am somewhat comfortable in my sexual relationship(s). My sexual relationship(s) is (are) satisfying.
4	>62	I am very comfortable in my sexual relationship(s). My sexual relationship(s) is (are) very satisfying.
Work and Employment involve going to my job, keeping up with my work responsibilities, learning new things, and relationships with people at work.
1	≤30	I am very unsatisfied and uncomfortable at my job. I have many difficulties doing my work.
2	31-40	I am somewhat unsatisfied and uncomfortable at my job. I have some difficulty doing my work.
3	41-50	I am somewhat satisfied and comfortable at my job. I have few difficulties doing my work.
4	>51	I am very satisfied and comfortable at my job. I have hardly any difficulty doing my work.