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International Translations of the LIBRE Profile

The International Consortium for translations of the LIBRE Profile is working toward making the LIBRE Profile available in countries around the world. The Consortium meets regularly with representation from the U.S., Mexico, Taiwan, Japan, and Australia. The plans for this Consortium are to track burn recovery among these countries for future use as part of a global program for providing the LIBRE Profile in the communities of each country. Key collaborators from each country are as follows:

  • Lewis E. Kazis, ScD, Professor of Health Policy and Management Director, Health Outcomes Unit and Center for the Assessment of Pharmaceutical Practices (CAPP) (Est. 2000), Department of Health Law, Policy and Management, Boston University School of Public Health, Boston, MA. Research Director, Rehabilitation Outcomes Center at Spaulding (ROCS), Spaulding Rehabilitation, Boston, Massachusetts, United States
  • Mariana Morales Garcia, MD, PM&R Physician, Burn Rehabilitation Service, National Burn Research Center, Mexico City, Mexico
  • Dale Edgar, BPhty (Hons), PhD, Senior Physiotherapist, AKG Research Coordinator, Safety and Quality Unity, Armadale Kalamunda Group Health Service, Armadale Hospital, Perth, Australia
  • Yukio Sato, MD, PhD, Assistant Professor, Department of Emergency & Critical Care Medicine, Keio University School of Medicine, Tokyo, Japan
  • Hui-Fu “Jeff ” Huang, MD, PhD, President, Taiwan Society for Burn Injuries and Wound Healing, Attending Plastic Surgeon/Director Skin Bank, National Taiwan University Hospital, Taipei, Taiwan

Status of Translation Efforts

As of the summer of 2024, both forward and backward translations of the LIBRE Profile assessments have been completed. Completed translations have undergone face validity checks with cognitive debriefing sessions for the Spanish, Chinese, Australian, and Japanese translations. Baseline administrations of the LIBRE Profile in Spanish and Chinese are well underway using web-based electronic administrations, telephone and mail for concurrent validation checks using the WHODAS and the VR-12. Test-retest reliability assessments are almost complete for the Spanish version with positive results. Analysis of data collected has begun for the test-retest and validation studies for the Spanish and Chinese versions of the LIBRE Profile. The Australian and Japan translations continue to be field tested. Additional qualitative analysis has been conducted by Dr. Kazis that is a spinoff to the International Consortium with interviews examining practices of burn care in 12 countries. Based upon this work a manuscript was previously published and appeared in the Journal of Burn Care and Research (JBCR). A second manuscript was published in JBCR (2022-2023) on the impact of the COVID-19 Pandemic on burn care.

Select Presentations

2024

Dr. Lewis Kazis is a Distinguished Speaker at the annual meeting of the National Taiwan Society for Burn Injuries in Taichung City, Taiwan. This event is dedicated to the theme of Enhancing the Healing Process in Wound Treatment and Burn Care.

An abstract by Dr. Jeff Huang has been accepted for the 2024 ISBI/BBA Congress as a podium presentation to be held in the United Kingdom. This reflects the work done on a validated Chinese translation of LIBRE. The title of the presentation is: The Life Impact Burn Recovery Evaluation (LIBRE) in Taiwan.

2023

The Rehabilitation Outcomes Center at Spaulding (ROCS) sponsored an International LIBRE Profile Collaboration webinar. The webinar highlighted international efforts to translate the LIBRE Profile. The recording is available to view below.

2022

The U.S. and Mexican colleagues, led by Dr Marina Morales Garcia, presented a podium presentation at the Congress of the International Society for Burns Injuries (ISBI) titled, The Life Impact Burn Recovery Evaluation Short Form Translation into Spanish. This presentation given by Dr. Garcia was awarded The Rehabilitation Specialist Prize in recognition of significant contributions of patients with burn injuries through clinical practice, clinical teaching, and community service.