Agenda for the Spaulding Harvard TBI Model System 2024 Summit

Time

Focus

Speaker(s)

Welcome – Why Are We Here?

9:00-9:10

Joseph T. Giacino, PhD
Project Director, Spaulding-Harvard TBI Model System
Director, Rehabilitation Neuropsychology, Spaulding Rehabilitation Hospital
Director, Spaulding Rehabilitation Network Disorders of Consciousness Program
Co-Director, Rehabilitation Outcomes Center at Spaulding
Professor, Department of Physical Medicine & Rehabilitation, Harvard Medical School

Donald Berwick, MD
President Emeritus & Senior Fellow, Institute for Healthcare Improvement
Chair, National Academy of Science, Engineering & Medicine, Committee on Accelerating Progress in TBI Research and Care

Part I: Background and Statement of the Problem

9:10-10:25

Statement of the problem and state of the science (15 min each)

Disabilities associated with severe TBI and unmet needs

Flora Hammond, MD
Professor and Chair, Department of Physical Medicine & Rehabilitation
Indiana University School of Medicine

Current knowledge of recovery trajectories and outcome

Joseph T. Giacino, PhD
Project Director, Spaulding-Harvard TBI Model System
Professor, Department of Physical Medicine & Rehabilitation, Harvard Medical School

Inpatient rehabilitation aims and effectiveness

John Whyte, MD, PhD
Institute Scientist Emeritus, Moss Rehabilitation Research Institute

Overview of existing health service delivery pathways

John Corrigan, PhD
Professor, Department of Physical Medicine & Rehabilitation, The Ohio State University Wexner Medical Center
Director, Ohio Brain Injury Program

CMS’s 3-hour rule: Strength of the evidence

Cynthia Beaulieu, PhD, ABPP-CN
Associate Professor – Clinical, Department of Physical Medicine & Rehabilitation
The Ohio State University College of Medicine

10:25-10:40

Q&A

Chloe Slocum, MD, MPH
Director, Health Policy, Spaulding Rehabilitation, Department of Physical Medicine & Rehabilitation

10:40-11:00

Break

11:00-11:30

NASEM TBI Roadmap Report on gaps and challenges in current TBI care and research (15 min each)

Purpose, scope and relevance to Summit

Donald Berwick, MD
Chair, National Academy of Science, Engineering & Medicine, Committee on Accelerating Progress in TBI Research and Care

NASEM findings, recommendations and actions

Geoffrey Manley, MD, PhD
Professor & Vice Chairman of Neurological Surgery
University of California at San Francisco
Chief of Neurosurgery, Zuckerberg San Francisco General Hospital, Co-Director, Brain & Spinal Injury Center

11:30-12:30

Real-world perspectives on facilitators and barriers to care

History of post-acute care in the U.S.

Anne Deutsch, RN, PhD, CRRN
Clinical Research Scientist, Shirley Ryan Ability Lab's Center for Rehabilitation
Research Associate Professor, Department of Physical Medicine & Rehabilitation, Feinberg School of Medicine

Bioethics of care after severe TBI

Joseph Fins, MD, MACP, FRCP
The E. William Davis, Jr., MD, Professor of Medical Ethics & Professor of Medicine
Chief, Division of Medical Ethics, Weill Cornell Medical College

Moderated discussion including persons with lived experience

Moderator: Joseph Fins, MD, MACP, FRCP

Perspective of a person with lived experience

Enrico Quilico, PhD, MA, BEd
Postdoctoral Fellow, Baylor Scott & White Research Institute

Perspective of a family caregiver

Maryam Mohit

Perspective of an advocacy organization serving persons with severe TBI

Rick Willis
President & CEO, Brain Injury Association of America

12:30-1:30

Lunch

Part II: Partnerships and Solutions

1:30-3:00

Successful clinical-scientific-government partnerships (15 min each)

UK Rehabilitation Outcomes Collaborative (UKROCS)-(UK)

Lynne Turner-Stokes, DM, FRCP, MBE
Northwick Park Professor of Rehabilitation Medicine, King’s College London
Director, Regional Hyper-acute Rehabilitation Unit, Northwick Park Hospital, UK

EENnacoma, Knowledge Center for Patients with PDOC (NED)

J. Lavrijsen, MD, PhD
Senior Researcher in Elderly Care Medicine
Lecturer & Program Leader, Department of Primary & Community Care
Radboud University Medical Center, Nijmegen, Netherlands 

Brain Injury CA-Canadian TBI Research Consortium (CA)

Alexis Turgeon, MD, MSc
Professor & Director of Research, Department of Anesthesiology & Critical Care Medicine
Faculty of Medicine, Université Laval, Québec City, Québec, Canada
Research Chair in Critical Care Neurology & Trauma

International Initiative for TBI Research (InTBIR)

Kathryn Hendrick
Kathryn Hendrick Communications

Curing Coma Campaign (US)

Claude Hemphill, MD, MAS
Kenneth Rainin Endowed Chair in Neurocritical Care
Professor of Neurology & Neurological Surgery
University of California, San Francisco
Chief, Neurology Service, Zuckerberg San Francisco General Hospital
Co-Chair, Curing Coma Campaign

Payor perspective: Paradigm for Healthcare (US)

Michael Choo, MD, MBA, FACEP, FAAEM, CMRO
Chief Medical Officer & Senior Vice President
Workers’ Compensation, Paradigm

3:00-3:30

Q&A

Joseph T. Giacino, PhD

Next Steps

3:30-3:50

Summit deliverables

Joseph T. Giacino, PhD

Leavitt Partners’ TBI Workshop on the “3-hour rule”

Amy Rick, JD
Principal, Leavitt Partners

Closing

3:50-4:00

Final remarks

Joseph T. Giacino, PhD