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OVERCOMING OBSTACLES AFTER STROKE: JIM AND NANCY CELEBRATE 50TH ANNIVERSARY IN HAWAII

Jim and Nancy Celebrate 50th Anniversary in Hawaii

Jim and Nancy Graham had already planned and paid for a long-anticipated trip to Hawaii when Jim had a serious stroke.  He was just 61, and retirement was not on his radar. 

“I was fat, dumb, happy and indestructible,” he says of his life before the stroke. 

After was another story. Following treatment at Massachusetts General Hospital, Jim was admitted to Spaulding Rehabilitation Hospital Cape Cod for rehabilitation. His left side was paralyzed.  He couldn’t walk and didn’t have use of his left arm or hand.  Going home was his first goal, but like many aspects of stroke recovery, that wasn’t a simple matter.

“Aside from the physical effects of the stroke, my biggest concern was would I be emotionally able to recover,” Jim says.  “Everything had changed.  In a couple of heartbeats on a Saturday morning, I was dependent on others for everything.  That put me in a dark place.”

Like others whose lives have been upended by stroke, Jim’s first days of confronting a new reality were filled with doubt.  Helping Jim make sense of it all was his team of rehabilitation specialists at Spaulding Cape Cod.  “My therapists worked on improving my physical condition, giving me confidence that I could make progress.”

Daina Juhansoo, DPT, one of Jim’s therapists, describes the day she felt Jim was ready to trial climbing stairs. “He was very unsure of himself and couldn’t imagine trying even one step. He said our practice steps looked like a mountain, it was insurmountable.  But Jim trusted me and trusted our process, and he went for it.  Before he knew it, he was on the top step.  He experienced an incredible sense of accomplishment and hope.” 

 “The therapists have the expertise.  They know what you can do,” Jim says.  “You may not know it, but they do, and they work you to that end.”

Including the family in the rehab process is an important part of Spaulding’s philosophy of care. Nancy attended family meetings.  “The biggest part for me was to understand what was going on.  There was no dumb question.”  They were always there for me.”

Communication between the team and family was critical as Jim and Nancy prepared for him to go home. “After the medical crisis is over and your loved one is coming home, you wonder, where do we go from here, how do I do this?  I really don’t know how I would have managed without Spaulding’s support,” Nancy says.

Though Jim was home, the couple had reconciled themselves to cancelling the Hawaii trip. During a follow-up visit, they asked Jim’s neurosurgeon to sign the paperwork.  He refused. “He told us, ‘the stroke is over.  You have to learn to live your life because you don’t know what tomorrow will bring,’” says Nancy.  “It opened a lot of doors for us.  We didn’t need to sit home.  We didn’t need to be afraid.”

Still, Jim was hesitant.  An adventure like that seemed more than he could handle. So he told his outpatient therapists who incorporated  preparing for the trip into Jim’s therapy plan.  “We worked on improving my mobility, on increasing the exercises, and gradually my stamina improved.”

Eleven months after the June morning of the stroke, Jim and Nancy embarked on their Hawaiian cruise.   “It was extremely important that we realized that dream,” Jim says. “I learned that I could do it and should do it.” 

They fell in love with the islands.   They returned for a month to celebrate their 50thwedding anniversary with their daughter, son-in-law and granddaughter.   Among many other adventures, they’ve climbed trails at Volcano National Park, ventured through the steamy rain forest, and taken a helicopter ride over a volcano. 

Though Jim retired after the stroke, he found an outlet for his energy and what he learned about life and recovery. He proposed creating a Stroke Survivor’s Support Group at Spaulding Cape Cod, which he continues to lead, and he visits patients who’ve just had a stroke, sharing his story.

“What makes Jim’s involvement with our patients so special is that he remembers what it feels like to be in their shoes – the fear of the unknown, the fear of losing the life they’ve been living. He encourages them to trust in their bodies’ potential for healing and to trust in the skill we have to offer.  It’s pretty powerful for patients and families to hear that message.”  

Many moments from Jim’s and Nancy’s Hawaii trips stand out, but one is emblematic of Jim’s journey after stroke, his tenacity and belief that there will be a way to get to a goal. 

“There was a hill in the rainforest I wanted to climb. Man, that was hard!  But I climbed it myself, using a cane.  I used to not like the cane, but now it’s like a badge.  I wish I had a photo of myself at the top of that hill, because I did it.”

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